On Separation and the Breaking of a Heart

by Shannon on November 7, 2013

Woman on BeachWhen you love someone, so deeply that it affected the core of your soul, there are no words to describe what it’s like being torn between being there for them in their time of need and taking care of other responsibilities that just can’t be put off any longer. Your heart aches as you part ways – knowing they will need to face this part of the journey alone. The tears get caught in your throat as you yearn to find the right words to comfort them over the miles… the words that would normally be easily found in a simple holding of hands.

I’m trying not to cry but the tears have other plans. Continue Reading →

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CF, Transplant, Cancer and No Immune System

October 1, 2013

Dear Friends & Family, We just received word today that Greg (my husband) still has absolutely no immune system – even many months after chemotherapy. We’ve been giving him painful daily shots to stimulate his white/red/platelet blood cells with no luck. They will come back – just a bit – and then tank to almost […]

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2nd Chance at Life: The Life Quest

April 24, 2012
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Before an organ transplant, when you’re body is frail and you don’t know if you are going to live or die, your main goal is to stay alive long enough to get that transplant. Every moment it is about surviving long enough to witness the miracle of organ donation in your life and to come […]

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To Love Beyond Illness

March 23, 2012
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I know. I had pledged to take a sabbatical from this blog. I thought there was nothing left to say. I felt as though I had no more to share with others about organ donation and transplant awareness. That was, until a few moments ago, when a friend shared a photo on Facebook of someone […]

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My Long-Term Angel Cove Sabbatical

October 25, 2011
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As of this posting, I will be on long-term sabbatical from the Angel Cove Transplant Blog. Over the last year, I’ve flip-flopped back and forth on whether or not to keep this blog up and running. It’s one thing to write from the heart but an entirely different thing to write because you feel like […]

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Swim: A Memoir of Survival (Book Review)

August 9, 2011
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Diving headfirst into the harshness of disease and the triumph of the miracle of life, double heart and kidney transplant survivor Bill Coon takes you along as he swims the choppy waters of his own life in his book Swim: A Memoir of Survival. In 1989, Bill Coon was born with a congenital heart defect. […]

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Increased Coughing and the CF Smell

August 5, 2011
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When you’ve lived around someone with an illness as long as I have, you start to learn the subtle changes in that person that flag a small alarm in the back of your head. It can be a small change in behavior or the slight discoloration of skin. Sometimes it can even be a feeling […]

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