When you’ve lived around someone with an illness as long as I have, you start to learn the subtle changes in that person that flag a small alarm in the back of your head. It can be a small change in behavior or the slight discoloration of skin. Sometimes it can even be a feeling […]
A new inhaled antibiotic, Cayston®, recently received Food and Drug Administration (FDA) approval. Cayston was developed in collaboration with Gilead Sciences, Inc., and is the first CF drug to advance — from beginning to end — through the Cystic Fibrosis Foundation’s drug development pipeline.
It was 35 years ago this past weekend that the world was blessed with a beautiful baby boy who happened to have Cystic Fibrosis (CF). The parents did not know how sick he was until he came down with pneumonia at 2 months old and sweat tests confirmed that their beautiful baby boy, Greg, was […]
So many of you commented on my note looking for people to join my Cystic Fibrosis Great Strides Walk 2009 team – stating that you were too far to join the team but wanted to make a donation. With my personal goal set to $3,000, here it is! To make a tax-deductible donation, visit http://www.cff.org/Great_Strides/ShannonSteffen5260 […]
It’s that time of year again for our annual Great Strides walk to Cure Cystic Fibrosis (CF) event and we need walkers. Not only do you raise money for a great cause but you have a chance at earning some great prizes, get free food and a day free at the Milwaukee Zoo! For more […]
New Design:Cystic Fibrosis Ribbon Hope Purchase this design and more Cystic Fibrosis Awareness T-Shirts & Gifts on t-shirts, mugs, oval euro stickers, bumper stickers, bags, magnets, and more Angel Cove today and be sure to use coupon code SUITEDNICKEL for $5 off your purchase of $50 or more no through September 11th, 2008!
The Cystic Fibrosis Foundation has just released some great news: 1. The Senate officially recognized May 2008 as National Cystic Fibrosis Awareness month. 2. Congress passed the Genetic Information Nondiscrimination Act (GINA) today. This law makes it illegal for employers and insurance companies to discriminate based on genetic information. 3. President Bush signed into law […]