May is National CF Awareness Month

May is National Cystic Fibrosis Awareness Month…

…and CF awareness starts with YOU The CF Foundation needs your help to educate your elected officials about cystic fibrosis in just a few simple steps—let them know how they can help us add tomorrows every day.

The Congressional Cystic Fibrosis Caucus, co-chaired by Congressmen Edward Markey (D-MA) and Cliff Stearns (R-FL), is sponsoring a Congressional resolution recognizing May as National Cystic Fibrosis Awareness Month. Click here to read Reps. Markey and Stearns letter to House members.

TELL your story and ASK your Congress member to support the CF Awareness Resolution. Click here to read the resolution.

Three Action Steps to Tell the Story of CF:

Write, e-mail or telephone your representative asking that he/she co-sponsor House Concurrent Resolution 85 (H. Con. Res. 85) recognizing May 2007 as National Cystic Fibrosis Awareness Month. Here’s how:

  1. Identify Your Representative
    To learn who represents you in Congress, go to
  2. Contact Your Representative in DC or at Home.
    First, click here to see if your representative is a member of the CF Caucus.
    By E-mailUse a sample letter to ask your member to support Cystic Fibrosis Awareness Month. Be sure to add your personal story about CF.
    Use this letter if your representative IS a member of the CF caucus.Use this letter if your representative IS NOT a member of the CF caucus.Use this letter if your representative is Ed Markey or Cliff Stearns, the co-chairs of the Congressional CF Caucus.
    By TelephoneUse this suggested phone script to call your representative’s office.
  3. Keep Us Posted
    Please let the Public Policy Department know what action you have taken. This step is vital in producing a successful advocacy campaign. Simply fill out and e-mail us this short form so we can document your communications.

For further information, call the CF Foundation Public Policy Department at 1-800-FIGHT CF (344-4823)

Crossposted from:

After her husband received a double-lung (bilateral) transplant in 2004, Shannon founded the Angel Cove Organ Donation Awareness Shop, which provides awareness t-shirts and gifts products for transplant recipients, living organ donors and donor families - giving 100% of the profits to help heart and lung transplant recipients with medical costs. Shannon lives in Milwaukee, Wisconsin with her wonderful husband and two chocolate Labrador Retrievers.

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