We’re Now a 2-Illness Family

I’ve been quite and if you check with my husband he will tell you that my being quiet is no short feat. Usually I’m the one to tell everyone about the Hubs’ Cystic Fibrosis and double-lung organ transplant. Yes, I scream it from the top of the roofs because it is a testament to his strength and will to live. However, I’m not so verbal when it comes to my own illness.

Supporting the Hubs was always my first priority and over the last 12 years, it was my duty to give him strength when he needed it most. It was my responsibility to make sure he took care of himself and that he received the best care possible. Not many know that I’ve also been sick over the last 12 years – I just didn’t have a diagnosis until April 2010. I have Fibromyalgia.

Funny how life throws you a curve ball when you least expect it. After the Hubs’ miracle double lung transplant, we were to travel the world and experience all that life has to offer. Then came the economic “crisis”, his layoff and then my business downturn. The icing on the cake was when I was given the news of my own illness.

Sure, I can say that was the worse day of my life but I’m not a victim. Honestly, it was a very liberating day as I finally had a name to the illness that caused me to have many surgeries, chronic pain, fatigue and a host of other problems. I was given a bulls-eye in which to aim my punches.

The table has turned and as I continue to figure out my Fibromyalgia, the Hubs is the one taking care of me when I need support and guiding assurance. The Hubs is the one that gets me a blanket, makes me a cup of tea or motivates me to get my muscles moving. He is my constant support and never-ending love.

So, yes, that’s why this blog has been quiet. We have become a 2-illness family and, until now, I wasn’t sure where my health fit into the scheme of things. I now support Cystic Fibrosis, Organ Donation and Fibromyalgia. Even my brain can only handle so much.

To help lighten the mental load, I’ve started a separate blog called the Fibromyalgia Warrior to help me chronicle my journey and hopefully help others. In the meantime, I will continue to write here at Angel Cove whenever something comes along that I think would help others – or if there is some news on the Hubs front.

You are welcome to continue following this transplant awareness blog and/or follow me over at Fibro Warrior – Life Beyond Fibromyalgia. Either way, I will continue to support awareness for these causes I hold dear and pray that you all stay safe, healthy and happy through your own journey.

After her husband received a double-lung (bilateral) transplant in 2004, Shannon founded the Angel Cove Organ Donation Awareness Shop, which provides awareness t-shirts and gifts products for transplant recipients, living organ donors and donor families - giving 100% of the profits to help heart and lung transplant recipients with medical costs. Shannon lives in Milwaukee, Wisconsin with her wonderful husband and two chocolate Labrador Retrievers.

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