The Heart of Angel Cove

Upon my couch I had started to think about where this blog is going and where it has been. At once, the Angel Cove Transplant Blog served as a means to communicate with friends and family about my husband’s health prior to and after his miracle double-lung transplant. As we come upon the 7th year anniversary of his first transplant dry run, I am left pondering yet again how much this blog has lost the human feel – the beat of our own hearts.

Last year I was diagnosed with Fibromyalgia – after 12 long years of being very sick with countless symptoms of the syndrome. It was after Greg (my husband) started to truly recover from his bilateral transplant that my symptoms became worse and the debilitation of the Fibromyalgia started to settle in. It was also about that time that Greg’s life started to truly begin and my life started to dwindle.

That was until yesterday.

A while ago, I had gotten an email from a guy by the name of Bill Coon. Although I had read his name a couple of places before, I must admit that I never really took the time to get to know him or his story. As it happens, Bill took is upon himself to get to know me – through my work on my Angel Cove Organ Donation Awareness website – and he sent me a copy of his book, Swim : A Memoir of Survival. The inscription inside the book read simply: “Shannon – I hope you enjoy the book! I have been wanting to work with Angel Cove for quite some time now. –Bill Coon.”

Really? You’ve been wanting to work with me? All I did was create a website and blog to convey my passion for organ donation awareness to others. It was my hope that just one person would become an organ donor by reading my husband’s story or by seeing someone wear one of our organ donation awareness t-shirts. I never thought about becoming more than a wife with a voice and a passion.

The funny part is that this is not the first time I’ve had this reaction to Angel Cove. Even in my SEO consulting business, I have had other organ donation awareness online shops contact me for help in increasing their traffic and sales. These people often tell me: “I want to be like Angel Cove.” Imagine their shock when I admit that I’m Angel Cove. “Oh my God! I love your stuff and website! Really? You’re THE Angel Cove?” Why, yes, I am!

So this leads me back to the Bill Coon’s book. It wasn’t until I started reading it yesterday that I realized the path that my husband and I have been on and exactly how far we have come. We have our own survival story and, unfortunately, my voice and heart got lost behind my own illness.

That is not to say that I’m making any excuses about my Fibromyalgia or for letting this blog become quiet. I had some things to take care of before I could move on in my life. Of course, I am still working through those things but I am beginning to realize that we have so much more left of our journey and passion to share with others.

It may take some time to become strong again but, in time, this blog’s heartbeat will be strong once again.

Side note: I will be writing a review of this book once I’ve read it entirely – within the next week. Stay tuned!

After her husband received a double-lung (bilateral) transplant in 2004, Shannon founded the Angel Cove Organ Donation Awareness Shop, which provides awareness t-shirts and gifts products for transplant recipients, living organ donors and donor families - giving 100% of the profits to help heart and lung transplant recipients with medical costs. Shannon lives in Milwaukee, Wisconsin with her wonderful husband and two chocolate Labrador Retrievers.

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