Tune up time

No, it isn’t one of our cars but Greg that needs a tune up. You see, those with CF call getting IV treatment as a “tune up”. (laugh) Yes, I am able to laugh about it because this has become our life together – every 5 weeks or so (this time it has been over 2 months! Yeah!) Greg gets home IVs for 2 weeks straight in order to clear out his lungs. So, tomorrow he goes to the hospital, gets a line hooked up to a port in his chest and does his IVs at home. The only time he has to be hospitalized for these is if he spikes a temp. Otherwise, the home care company delivers the IV jars (yes, jars – not bags) and Greg hooks himself up, pops the jar in his pocket and lives does normal things without much of a problem.Okay – there is one problem. Greg doesn’t get a lot of sleep, he can only take a partial shower (cause of the dressing), and he drives with the shoulder strap under his arm so it doesn’t bother the port site. Otherwise, in 3 days, he starts to feel like a new man and can breathe his full 18% lung capacity. Not to worry though – 5 dry runs on new lungs hasn’t gotten us down – those new lungs are just around the corner. God is just waiting for the right pair and letting our angel of a donor finish his or her work on this Earth. We are patient – one day at a time – we have faith!

After her husband received a double-lung (bilateral) transplant in 2004, Shannon founded the Angel Cove Organ Donation Awareness Shop, which provides awareness t-shirts and gifts products for transplant recipients, living organ donors and donor families - giving 100% of the profits to help heart and lung transplant recipients with medical costs. Shannon lives in Milwaukee, Wisconsin with her wonderful husband and two chocolate Labrador Retrievers.

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